Greyson is growing like crazy now and has already grown so much
that it is time for a new set of compression suits. So many of you
asked about how they make the suits fit so well so we thought we
would share a couple of pictures of the measurement process (they
measure his torso and hand along with both arms). Take a look in
the Gallery for a couple of shots of Tracey, the OT at Children's
that helps G out.
This visit we learned that the company in Ohio creates a pattern
and a computer cuts it out. Then someone sews it together. The suit
and glove are completely custom fit and I am amazed at the quality
every time I tug and pull on it to get it on him and especially
when he chews and bites at the glove. The first set has held up
well but we are looking forward to the new suit to come in soon.
This one has gotten so small that it is causing diaper leaking
issues and rides up on his belly.
We will be celebrating G's Birthday on Saturday and so I will
post some pictures of him soon after. We will also post an update
after his next appointment with Dr. Jiang, the plastic surgeon on
June 3. We hope to discuss next surgery plans for later in the year
and then hopefully not have to return until then.
I am thinking of migrating his CarePages site to a blog where I
have more control over the content and could add videos and more. I
am looking for a blog site that will allow me to set it up to have
email updates like CarePages so that those of you that want to know
when I make updates will get an email. I will let you know if and
when that happens.
Enjoy our spring....and stay in touch.
Brooke
