We met with the plastic surgeon and radiologist at Children's
Mercy today for a follow-up appointment for Greyson. They are very
pleased with his progress and how the compression garment is
working. Our main goal for the appointment was to talk about when
his next surgery would be and Dr. Jiang said he felt like December
would be good. His plan is to keep working on contouring the part
of "Buddy" they left and possibly see if the can fix the spot in
Greyson's middle finger.
Dr. Rivard suggested we go ahead and take Greyson down for ultrasound so that we wouldn't need to come back for that in the near future. They were able to fit him in and found that there were no large cysts. This means Greyson won't need any additional sclerosis (which was what we were hoping for).
While we were there we stopped by the OT/PT clinic and picked up another Under Armour. This one is fitting much better than the green tie-dyed one. The fingers on the green one are way too long. They are going to get that fixed and hopefully get that to us soon.
Greyson is doing so great. He has mastered crawling and found a new independence and perspective. He now seems to know what he wants and gets frustrated quickly when he realizes he can't get it. He really wants to walk but it is still a bit off. He hasn't quite figured out balancing yet.
I believe I have found a blog option to change Greyson's stuff over to and will only be posting "medical" updates here after I get that set up. There should be a way that you can subscribe by email (much like CarePages) if you want. I will make a post to give you all the details soon.
Take care,
Brooke, Michael & Greyson
Dr. Rivard suggested we go ahead and take Greyson down for ultrasound so that we wouldn't need to come back for that in the near future. They were able to fit him in and found that there were no large cysts. This means Greyson won't need any additional sclerosis (which was what we were hoping for).
While we were there we stopped by the OT/PT clinic and picked up another Under Armour. This one is fitting much better than the green tie-dyed one. The fingers on the green one are way too long. They are going to get that fixed and hopefully get that to us soon.
Greyson is doing so great. He has mastered crawling and found a new independence and perspective. He now seems to know what he wants and gets frustrated quickly when he realizes he can't get it. He really wants to walk but it is still a bit off. He hasn't quite figured out balancing yet.
I believe I have found a blog option to change Greyson's stuff over to and will only be posting "medical" updates here after I get that set up. There should be a way that you can subscribe by email (much like CarePages) if you want. I will make a post to give you all the details soon.
Take care,
Brooke, Michael & Greyson
