Today was Greyson's appointment with the doctors at Children's
Mercy to begin planning his upcoming surgery. We visited with the
radiologist, dermatologist and plastic surgeon along with all of
their nurses. They checked in and were all very pleased with the
shrinkage in Greyson's growth and the way his skin has changed. Dr.
Jiang, one of the plastic surgeons that will do the surgery says
that they are ready to plan and see what they can do for Greyson.
Their staff is working now to try and get this scheduled and we
will let everyone know as soon as there is a date. There are a lot
of individuals and resources to coordinate so this could take a
little time.
One of the biggest thing discussed was what to expect after surgery. The doctors want to make sure we understand that even after surgery, the chance of the growth reoccurring is possible and it is likely that he will have to have future surgeries as things progress. It seems to be the nature of this kind of "beast" and we will have to see what happens. We also talked about what to do with the spots in Greyson's right arm. For now we are going to wait and see how taking off the larger growth will affect his arm.
Greyson turns 5 months old tomorrow...he now weighs 16 pounds 2 ounces and is 26 inches long. He has gotten so strong and holds himself up well when we carry him. He is still working with the Special Instructor and Physical Therapist. They are trying to teach him how to roll over and how to sit up and he is getting so close on each but the weight of "buddy" presents some challenges.
Greyson jabbers a lot, smiles, and sometimes giggles. He is very
friendly and especially loves his TV friends. He still likes to go
on runs with me and will be able to continue this into the fall as
soon as we get the weather shield for the stroller. This weekend
Greyson is having a sleep over with my Dad and Beck when Michael
and I go out of town for the night. He is also going to get to try
rice cereal for the first time and get to go to his first race to
see me run. Next weekend will bring on his first Maple Leaf Parade
and trail ride at Gramps and Grandma B's. And he will have his
first Halloween at the end of the month.
We look forward to seeing or hearing from you all. Happy Fall!
Brooke (Michael & Greyson)
One of the biggest thing discussed was what to expect after surgery. The doctors want to make sure we understand that even after surgery, the chance of the growth reoccurring is possible and it is likely that he will have to have future surgeries as things progress. It seems to be the nature of this kind of "beast" and we will have to see what happens. We also talked about what to do with the spots in Greyson's right arm. For now we are going to wait and see how taking off the larger growth will affect his arm.
Greyson turns 5 months old tomorrow...he now weighs 16 pounds 2 ounces and is 26 inches long. He has gotten so strong and holds himself up well when we carry him. He is still working with the Special Instructor and Physical Therapist. They are trying to teach him how to roll over and how to sit up and he is getting so close on each but the weight of "buddy" presents some challenges.
Greyson jabbers a lot, smiles, and sometimes giggles. He is very
friendly and especially loves his TV friends. He still likes to go
on runs with me and will be able to continue this into the fall as
soon as we get the weather shield for the stroller. This weekend
Greyson is having a sleep over with my Dad and Beck when Michael
and I go out of town for the night. He is also going to get to try
rice cereal for the first time and get to go to his first race to
see me run. Next weekend will bring on his first Maple Leaf Parade
and trail ride at Gramps and Grandma B's. And he will have his
first Halloween at the end of the month.We look forward to seeing or hearing from you all. Happy Fall!
Brooke (Michael & Greyson)
No comments:
Post a Comment