Michael and I are starting to think we might need a timeshare in
KC. Looks like we will be coming back in a week or two for another
set of visits. Good thng is that we always have a yummy lunch and
do some shopping.
Today Dr. Jiang took out the second tube. It wasn't working properly anymore so it was doing no good. We hope that the drainage subsides and all will be well. We talked with him about Greyson having sclero in May or after summer to possibly treat another large cyst or two. Besides that, all is well.
Today Dr. Jiang took out the second tube. It wasn't working properly anymore so it was doing no good. We hope that the drainage subsides and all will be well. We talked with him about Greyson having sclero in May or after summer to possibly treat another large cyst or two. Besides that, all is well.
The second appointment was with PT/OT to measure him for a
compression vest/sleeve and glove. It will be custom made and
should be here in a week or two. If it fits he will get another and
will wear them 24/7 (that's why we will get 2). We ordered one in
blue tie-die and can get them in about any color we would like.
They will have to replace it every couple of months since he will
just keep growing.
Someday Greyson will get to pick the colors. Hopefully this will help with the swelling/drainage issues he has especially in his right arm.
All in all a good visit with docs again. Will update as things progress. Happy weekend.
Brooke
Someday Greyson will get to pick the colors. Hopefully this will help with the swelling/drainage issues he has especially in his right arm.
All in all a good visit with docs again. Will update as things progress. Happy weekend.
Brooke
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