We just met with Dr. Jiang and have decided that sclerosis isn't
going to be the plan of action today. Because Greyson hasn't had
considerable improvement in his ability to use his arm/hand it
isn't a great idea to cause more inflammation to the area and
possibly cause more problems. Dr. Jiang feels that getting the
second opinions from Boston and New York will help decide the plan
of action. He is going to have the drain tube taken out in a few
minutes and then we will go home. Now we wait and hope he is able
to use his hand more each day. Greyson has an appointment with a
nerve clinic on September 1. We hope to learn more soon.
Greyson doesn't seem to be in any pain. If you saw his smiling face you wouldn't think anything was wrong. His arm and chest area are a little swollen but not too bad. He is as happy as ever (has been the whole time) and has figured out how to work around his arm issue. He can use his shoulder but he can't lift his wrist or extend his fingers. He can grip with his whole hand but cannot touch his fingers and thumb together. His arm seems weak in general. What we have been told is that when nerves get damaged it takes time for them to fix themselves. We hope that will be less than more.
We will post as we learn more. While this is a surprise it is not unexpected for Greyson's condition. There is no way to fix what he has but we will deal with things as he grows. We do look forward to the day when he can tell us what is going on.
Thanks for everything.
Brooke, Michael, & Greyson
Greyson doesn't seem to be in any pain. If you saw his smiling face you wouldn't think anything was wrong. His arm and chest area are a little swollen but not too bad. He is as happy as ever (has been the whole time) and has figured out how to work around his arm issue. He can use his shoulder but he can't lift his wrist or extend his fingers. He can grip with his whole hand but cannot touch his fingers and thumb together. His arm seems weak in general. What we have been told is that when nerves get damaged it takes time for them to fix themselves. We hope that will be less than more.
We will post as we learn more. While this is a surprise it is not unexpected for Greyson's condition. There is no way to fix what he has but we will deal with things as he grows. We do look forward to the day when he can tell us what is going on.
Thanks for everything.
Brooke, Michael, & Greyson
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