***originally posted on CarePages
Today went well. We got to the hospital at 6am and Greyson was in a great mood. He had the waiting room and the sedation area all to himself including all the nurses, and by the time we left the room for his MRI, they were wrapped.
The MRI was scheduled to take 2 hours and only took a little over an hour and the Ultrasound lasted just over an hour so he was done a bit quicker than we expected. While we were waiting both Dr. Jiang (plastics) and Dr. Rivard (interventional radiologist) stopped in to talk about how great Greyson's chest looked. They each took a quick look at the MRI and agree that there is a some of the cysts growing back in his shoulder area (behind his clavicle) and the area around his elbow has gotten a bit bigger.
We hope to get a full report from Children's Mercy next week. Before leaving the hospital we requested the images be sent to Dr. Spaeth in Columbus and we hope that it gets to them by the middle to end of next week. After they review them they will weigh in as well and we will decide what (if anything) should be done.
Greyson woke up pretty quickly and we headed to the Keck's house so Greyson could play with Leo and Rachel and I could catch up. We went to lunch but Greyson started getting fussy and acted very tired. Within an hour he was burning up and his breathing was a bit labored. We called Dr. Jiang and he suggested we go back to the hospital and get him checked out. The doctor in the ER decided that it was a reaction in his lungs to the anesthesia and that ibuprofen should help with his fever and feeling bad. Within 30 minutes he was happy and eating a Popsicle and ice and saying hi and bye to the doctors and nurses going in and out of his room.
The day was a bit longer than planned and we are tired but all is well and he is sleeping like a log right now. Thanks for all and take care,
Brooke
Today went well. We got to the hospital at 6am and Greyson was in a great mood. He had the waiting room and the sedation area all to himself including all the nurses, and by the time we left the room for his MRI, they were wrapped.
The MRI was scheduled to take 2 hours and only took a little over an hour and the Ultrasound lasted just over an hour so he was done a bit quicker than we expected. While we were waiting both Dr. Jiang (plastics) and Dr. Rivard (interventional radiologist) stopped in to talk about how great Greyson's chest looked. They each took a quick look at the MRI and agree that there is a some of the cysts growing back in his shoulder area (behind his clavicle) and the area around his elbow has gotten a bit bigger.
We hope to get a full report from Children's Mercy next week. Before leaving the hospital we requested the images be sent to Dr. Spaeth in Columbus and we hope that it gets to them by the middle to end of next week. After they review them they will weigh in as well and we will decide what (if anything) should be done.
Greyson woke up pretty quickly and we headed to the Keck's house so Greyson could play with Leo and Rachel and I could catch up. We went to lunch but Greyson started getting fussy and acted very tired. Within an hour he was burning up and his breathing was a bit labored. We called Dr. Jiang and he suggested we go back to the hospital and get him checked out. The doctor in the ER decided that it was a reaction in his lungs to the anesthesia and that ibuprofen should help with his fever and feeling bad. Within 30 minutes he was happy and eating a Popsicle and ice and saying hi and bye to the doctors and nurses going in and out of his room.
The day was a bit longer than planned and we are tired but all is well and he is sleeping like a log right now. Thanks for all and take care,
Brooke
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